icebergYesterday was definitely 1-0 to Fibromyalgia or maybe it was the chronic fatigue, but it was almost impossible for me to get out of bed and do much of anything. For the ‘normal’ person a little catch up sleep is usually all that is needed, but not so with me. I slept on and off during the day and still slept all night and today i am still not up to my usual self.

My dreams, nightmares and night terrors, which have been quiet for a few months have suddenly reappeared over the last week and are waking me up several times a night, which is not good for anything! The rest of the time, when i finally get to sleep around 2 or 3am my mind is in constant conversation with itself.

And then there are the unhelpful people who advise me to take some exercise! Take some exercise my left foot! First i have to be able to get out of bed long enough to pick up some clothes and then i have to get dressed and the thought of doing so is beyond me, much less the physical action. People who do not live with this hell, just do not understand. When i am stating that i am having cereal for my tea, it is not because i have no other food, neither is it because i cannot be bothered to cook for one person, it is because it is physically impossible for me to do anything else and starvation is not something i had in mind!

I know it is all part of the syndrome, but i really wish it would give me a break!

I had to sweep the kitchen floor this morning as it was beyond leaving, but although i now have a pile, I am unable to bend down and scoop the pile up and put it in the bin. Am I lazy? Am i having you on, so you will feel sorry for me? No, I am simply telling you how it is.

And I have itchy skin, everywhere and if i scratch it, then it burns, so what is that about? Nope not changed anything! Moan over – for today, at least!!


13 thoughts on “1-0

  1. I hope tomorrow is a better day for you. When you suffer with devastating and debilitating chronic pain, the last thing you need is advice from those who have not experienced living with this silent illness. Fibromyalgia is ignored, denigrated and/or inadequately treated by a large number of health care providers, and those who have this condition can be viewed as having a psychological rather than a physical condition. In order to find a rheumatologist in Orlando, Florida, I was forced me hide the diagnosis of Fibromyalgia made by a renowned rheumatologist in Wisconsin back in 1996. Continue to do all that you are able to do that uplifts you spiritually, mentally and physically.

    1. Yes today is a better day, thank you. I think because fibro is such a variant problem it is difficult for people to understand it. Like you, i know people who work with it and others that barely get out of bed. I would be a bed person if it wasn’t for the fact that i live alone and i do not get up and get what i need, even cereal then there is no one to do it for me. Seeing the sunshine again, here, it heart warming, although in the mornings it is still a little chilly. I was diagnosed by a specialist and then referred back to my general practitioner and i am grateful for her and she will go out of her way to find something that will help me if she can.
      It good to see you back writing and i hope that hubby will continue to improve and you can have a day holiday at least.

    1. Today is a good day. I had lunch with a friend yesterday and we didn’t talk about all the bad stuff and he made me laugh and that lightens the heart somewhat and i am grateful for his patience. Thank you for your thoughts xxx

  2. I’m so sorry, friend. 😦 I know our words don’t make things better but I offer them anyway. Plus my prayers for a more pain-free tomorrow. You’re allowed to moan about this.

    1. Your prayers were heard and today i feel better both in my body and in my Spirit, but i know to take it easy, slowly and live within my sphere and that is different for everyone. Thanks you for your prayers.

  3. Aw, Beverley.

    I’m sorry you’re going through all this. I wish I had something more useful to say, but I don’t.

    I hope it eases up and gives you some relief soon.

    1. It was interesting until they started going on about supplements and then listed them at the bottom of the page. It is the ‘what causes it in the first place’ that they need to figure out. As for it being a virus or an infection, the question remains in why so many develop FMS or CFS after body trauma.

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